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Engagement Awareness
for Championing Care

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​Real Stories from Real People
patients & families having a voice, sharing experiences at the ground level 

How long should I be in the hospital?

1/14/2018

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My dad was readmitted into the hospital. They needed to plug something? for a pleural effusion, first needing to get his blood work correct from his blood thinners (10?). They said his blood work was good Friday night but because it was a holiday weekend, they were not going to do the procedure until Monday. He was in the hospital for seven days. 
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The staff should tell me or write down the lab and value they were monitoring, the name of the procedure, or I should have recorded with my phone. The procedure should have been done when his blood work was stable so he could go home for the holidays. 

The number of days as an inpatient is public knowledge. My dad should only have been in the hospital for
4-5 days; I could have called case management or the Chief Experience Officer for the hospital. ​[see resources, file for # days in the hospital]
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My mom fell and was in the hospital and rehab for weeks

5/12/2017

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My mom has severe dementia in her 80s and fell in the long term facility where she was living. After the hospital, they took her to rehab for weeks.
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The average rehab stay for her age and condition was 14 days.
The phone number earlier for Medicare (CMS), to have a case manager involved earlier, who called to get my mom discharged because they were not doing rehab over the weekend and she should be transferred back to her home.
A couple of months later my mother became unresponsive. The home called an ambulance and she was taken to the emergency room (ER) where she revived and was fine. The doctors speculated her heart rate went very low in the 30s-40s and then came back up on its own, no treatment.
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The difference between a living will and advanced directives, so having a 'Do not resuscitate' (DNR)/no code status, to also have an open discussion with advanced directives documents clearly defined when to call an ambulance, and when to leave my mother, allowing her to go peacefully in her home when it is her time - without invasive treatment.
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    I wish I knew

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  • DHC
  • AWARE
    • why is it needed
    • about us
    • I wish I had known
    • resources
    • education benefits
  • Blog
  • ART
    • Healing Home & Repose
    • Healing Moment & Touch
    • Healing Peace
    • Healing Gift & Hope
    • Healing Love & Ripple
  • Books
  • PARC
    • Services
  • PACE
  • Contact